Keri Topperwien: Facebook

[et_pb_section admin_label=”section”][et_pb_row admin_label=”row”][et_pb_column type=”4_4″][et_pb_image admin_label=”Image” src=”http://newswhakatane.nz/wp-content/uploads/2016/09/Chace.jpg” show_in_lightbox=”off” url_new_window=”off” use_overlay=”off” animation=”left” sticky=”off” align=”left” force_fullwidth=”off” always_center_on_mobile=”on” use_border_color=”off” border_color=”#ffffff” border_style=”solid”] [/et_pb_image][et_pb_text admin_label=”Text” background_layout=”light” text_orientation=”left” use_border_color=”off” border_color=”#ffffff” border_style=”solid”]

As Facebook users, we probably all share to a certain degree that love/hate relationship with social media. In the space of a few minutes, we have access to people, places, politics, and so much more. While social media isn’t without its dangers, when used for genuine purposes, it can have many positive effects on individuals and communities.

Our personal experience of using Facebook has been overwhelmingly positive. We were one of many families that used it as a means to keep our whanau and friends updated with our son, Chace’s medical updates during treatment. Often families and friends can feel unsure about how things are going, so it provides an accessible way to keep connected and allows parents/caregivers the power to choose what information is shared and what it kept private.

I recall the day I submitted my request to Facebook admin to change our page from “Chace Topperwien Fundraising “ to the “Dream Chaser Foundation”. This required a lot of emotional energy and was harsh reminder of the group we now belonged to – bereaved parents.

Since then, our Facebook page has been engine room to our charity. It is an invaluable tool for us to promote bone marrow and everything that we do to support children with cancer in Aotearoa.

There is of course, the darker side of running a community page. We have our fair share of spam or bulling messages that are privately sent. Often these are from people with a particular agenda who have only one intention, to upset and disrupt.

I would be lying if these messages didn’t affect me, however four years on, I have managed to not be pulled into their orbit and often ignore or use the “block” option. Every now and then, I have bitten back, and every time it has resulted in more abuse and in some cases disturbing bullying.

We are one of many not for profit or “good causes” that are subject to this. Sometime I see, parents from various organisations around the world reply publically, and while this is tempting, I follow the more subtle approach of not giving these people/groups the ability to draw more attention to their cause by exposing them. The “name and shame” theory doesn’t have the same affect when the majority are sent from fake profiles. I believe that without a voice, their messages can fall flat and hopefully sends a message not to bother.

Instead we use our page as a means to bring our personal experience, the experiences of families, and our supporters together in a positive, real and accessible way. There are moments where I have to consider the audience when I’m writing my posts and while they may seem that they are “organically” written, often they are written after a few days thought about the particular topic.

We owe a lot to the positive power of social media, the trajectory of Dream Chaser might be much different if we didn’t have this tool to spread our messages of love, hope and positivity.

You may have noticed we never change our profile pic, this picture of Chace with his beautiful blond locks is very special to us. It was taken on the first day of treatment. It still, despite what happened, represents hope to us. It can be very stressful running a child cancer charity so this picture helps to keep us grounded and remember why we do everything we do.

Opinion by Keri Topperwien

[/et_pb_text][et_pb_image admin_label=”Image” src=”http://newswhakatane.nz/wp-content/uploads/2016/09/Dreamchaser-Foundation-Quarter-Page-Strip.jpg” show_in_lightbox=”off” url=”www.dreamchaser.co.nz” url_new_window=”off” use_overlay=”off” animation=”left” sticky=”off” align=”left” force_fullwidth=”off” always_center_on_mobile=”on” use_border_color=”off” border_color=”#ffffff” border_style=”solid”] [/et_pb_image][/et_pb_column][/et_pb_row][/et_pb_section]

74 thoughts on “Keri Topperwien: Facebook

  1. Hey there this is kinda of off topic but I was wanting to know if blogs use WYSIWYG editors or if you have to manually code with HTML.

    I’m starting a blog soon but have no coding expertise so I
    wanted to get advice from someone with experience.
    Any help would be greatly appreciated!

  2. Hi! I could have sworn I’ve been to this site
    before but after looking at some of the posts I realized it’s new to me.
    Regardless, I’m certainly delighted I stumbled upon it and I’ll be book-marking it and checking back often!

  3. This is very interesting, You’re a very skilled blogger.
    I’ve joined your rss feed and look forward to seeking more
    of your wonderful post. Also, I’ve shared your website in my social networks!

  4. When I initially commented I clicked the “Notify me when new comments are added” checkbox and now each time a comment is
    added I get three emails with the same comment. Is there any way you can remove people from that service?
    Cheers!

  5. You really make it appear so easy with your presentation but I in finding this matter to be really one thing which I think I might by
    no means understand. It sort of feels too complicated and very extensive for me.
    I am looking ahead on your subsequent submit, I’ll try to get the hold of it!

  6. With havin so much content and articles do you ever run into any problems of plagorism or copyright violation? My site has
    a lot of completely unique content I’ve either authored myself or outsourced but it appears a lot of it is popping
    it up all over the internet without my agreement.
    Do you know any techniques to help protect against content from being stolen? I’d
    truly appreciate it.

  7. Wow, marvelous blog layout! How long have you been blogging for?

    you make blogging look easy. The overall look of your website is excellent, let alone the content!

  8. Excellent website. Lots of useful information here.
    I’m sending it to several buddies ans additionally
    sharing in delicious. And obviously, thank you in your effort!

  9. Howdy! I’m at work surfing around your blog from my new apple iphone!
    Just wanted to say I love reading through your blog
    and look forward to all your posts! Carry on the superb work!

  10. Hmm it seems like your website ate my first comment (it was super
    long) so I guess I’ll just sum it up what I submitted and say, I’m thoroughly enjoying your blog.

    I as well am an aspiring blog blogger but I’m still new to everything.

    Do you have any helpful hints for rookie blog writers?
    I’d really appreciate it.

  11. This is really interesting, You are a very skilled
    blogger. I have joined your rss feed and look forward to
    seeking more of your wonderful post. Also, I’ve shared your website in my social networks!

  12. Hey I know this is off topic but I was wondering if you knew of any widgets I could add to my blog that automatically
    tweet my newest twitter updates. I’ve been looking for a plug-in like this for quite some time
    and was hoping maybe you would have some experience with something like this.
    Please let me know if you run into anything.
    I truly enjoy reading your blog and I look forward to your new updates.

  13. Hello would you mind letting me know which web host you’re using?
    I’ve loaded your blog in 3 completely different web browsers and I
    must say this blog loads a lot faster then most.

    Can you recommend a good internet hosting provider at a honest price?
    Kudos, I appreciate it! plenty of fish natalielise

  14. Hi, I just hopped over to your web-site through StumbleUpon. Not somthing I might typically browse, but I liked your views none the less. Thanks for making something worthy of reading through.

  15. I’m not sure why but this weblog is loading incredibly slow for me.
    Is anyone else having this problem or is it a issue on my end?
    I’ll check back later and see if the problem still exists.

  16. Its like you read my mind! You appear to grasp so much approximately this, like you wrote the e book in it or something.
    I think that you can do with some p.c. to pressure the message house a little bit, however other than that,
    this is great blog. A great read. I’ll definitely be
    back.

  17. Generally I do not learn article on blogs, but I would like to
    say that this write-up very pressured me
    to try and do it! Your writing taste has been surprised me.
    Thanks, quite great post.

  18. I know this if off topic but I’m looking into starting my own blog
    and was curious what all is needed to get set up? I’m assuming having a blog like yours would cost a pretty penny?
    I’m not very internet savvy so I’m not 100% sure. Any suggestions or advice would be greatly appreciated.

    Appreciate it

  19. I’m more than happy to uncover this web site.
    I need to to thank you for ones time for this fantastic read!!

    I definitely loved every part of it and i also have
    you bookmarked to see new things in your blog.

  20. you are actually a good webmaster. The web site loading pace is amazing. It seems that you are doing any unique trick. Also, The contents are masterwork. you have done a great activity on this matter!

  21. Excellent blog right here! Additionally your website quite a bit up very fast! What host are you the use of? Can I am getting your affiliate hyperlink in your host? I desire my website loaded up as fast as yours lol

  22. Wow, fantastic blog format! How lengthy have you been running a blog for? you made blogging glance easy. The total look of your site is great, let alone the content material!

  23. Hi, Neat post. There’s a problem with your site in internet explorer, would check this… IE still is the market leader and a big portion of people will miss your magnificent writing due to this problem.

  24. Hi! I simply would like to offer you a big thumbs up for the excellent info you have got right here on this post. I will be returning to your web site for more soon.

  25. I’ve learned quite a few important things by means of your post. I might also like to state that there might be situation where you will have a loan and do not need a co-signer such as a National Student Support Loan. When you are getting credit through a conventional finance company then you need to be willing to have a cosigner ready to make it easier for you. The lenders will probably base that decision using a few elements but the main one will be your credit worthiness. There are some creditors that will also look at your job history and make a decision based on this but in many cases it will hinge on your rating.

  26. Hi there friends, you are sharing your feelings about blog Search engine optimisation, I am also new user of web, therefore I am also getting more from it. Thanks to all.

  27. hello!,I like your writing very much! share we communicate more about your article on AOL? I require an expert on this area to solve my problem. May be that’s you! Looking forward to see you.

  28. You can definitely see your enthusiasm in the work you write. The world hopes for even more passionate writers like you who are not afraid to say how they believe. Always follow your heart.

  29. I loved as much as you will receive carried out right here. The sketch is attractive, your authored subject matter stylish. nonetheless, you command get bought an shakiness over that you wish be delivering the following. unwell unquestionably come further formerly again as exactly the same nearly a lot often inside case you shield this hike.

  30. I have to get across my admiration for your generosity giving support to individuals who need guidance on this issue. Your personal commitment to passing the solution across had become exceptionally valuable and has constantly permitted many people much like me to attain their goals. Your insightful tutorial signifies a whole lot to me and additionally to my office colleagues. Thank you; from each one of us.

  31. Heya i’m for the first time here. I came across this board and I find It really helpful & it helped me out a lot. I’m hoping to present one thing again and help others such as you aided me.

  32. Thanks , I’ve recently been looking for information about this topic for ages and yours is the greatest I have discovered so far. But, what about the conclusion? Are you sure about the source?

  33. Hey! awesome blog! I happen to be a daily visitor to your site (somewhat more like addict 😛 ) of this website. Just wanted to say I appreciate your blogs and am looking forward for more!

  34. Hello. Neat article. There is a problem with your site in firefox, and you might want to check this… The browser is the marketplace chief and a huge section of people will pass over your excellent writing due to this problem.

  35. Someone necessarily lend a hand to make seriously posts I might state. This is the very first time I frequented your website page and thus far? I amazed with the research you made to create this actual submit extraordinary. Excellent process!

  36. Oh my goodness! Impressive article dude! Thank you so much, However I am encountering difficulties with your RSS. I don’t understand why I cannot join it. Is there anyone else getting the same RSS issues? Anyone that knows the solution will you kindly respond? Thanks!!

  37. What’s up, it’s understandable article along with this YouTube video; I canít think that one can not understand this effortless paragraph having with video presentation.

  38. Please let me know if you’re looking for a article author for your site. You have some really great articles and I think I would be a good asset. If you ever want to take some of the load off, I’d really like to write some content for your blog in exchange for a link back to mine. Please blast me an email if interested. Many thanks!

  39. There are definitely a number of particulars like that to take into consideration. That may be a great level to deliver up. I supply the ideas above as basic inspiration however clearly there are questions just like the one you carry up the place an important factor will probably be working in sincere good faith. I don?t know if finest practices have emerged around issues like that, however I’m certain that your job is clearly identified as a fair game. Each boys and girls really feel the affect of only a moment’s pleasure, for the remainder of their lives.

  40. What’s Happening i am new to this, I stumbled upon this I have found It positively useful and it has aided me out loads. I hope to contribute & aid other users like its aided me. Great job.

  41. Hi! Do you know if they make any plugins to protect against hackers? I’m kinda paranoid about losing everything I’ve worked hard on. Any suggestions?

Leave a Reply

Your email address will not be published.